The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. We currently manage more than 40 funds—each of which covers the FDA-approved medications that treat a specific disease. Since our founding in 2009, The Assistance Fund has helped more than 43,000 adults and children access the medicines they need to stay healthy or manage a chronic condition.
Association of Gastrointestinal Motility Disorders The Association of Gastrointestinal Motility Disorders, Inc. (AGMD), is one of the oldest non-profit organizations in existence with a focus on digestive motility diseases and disorders. The organization is most unique in that it is an international organization, which brings together patients, family members, physicians, nurses, basic science and clinical researchers, pharmaceutical and diagnostic professionals, home health care workers, dietitians, biotech industrialists, other organizations, and those in the community interested in digestive motility diseases and disorders through a variety of resources and programs. It is an organization, which focuses on education, the dissemination of information, advocacy, outreach, research, and support.
The mission of the American Headache Society is to improve the care and lives of people living with headache disorders. The American Headache Society (AHS) is a professional society of health care providers dedicated to the study and treatment of headache and face pain. The Society’s objective is to promote the exchange of information and ideas concerning the causes and treatments of headache and related painful disorders. Educating physicians, health professionals, and the public and encouraging scientific research are the primary functions of our Society. AHS activities include an Annual Scientific Meeting, a comprehensive headache symposium, regional symposia for neurologists and family practice physicians, publication of the journal Headache and sponsorship of the American Migraine Foundation.
Our goal is to help and support people with chronic illness cope with their condition better. We create care packages that help people who need them. We also bring awareness and advocate for those living with conditions people may not be aware of. The compassion kits are designed to be something to grab quickly when heading to the emergency room and typically include: a cold pack, heat pack, tissues, alcohol wipes, some candy, a couple electrolyte flavor packets, a spritzer with mineral water and a popsicle stick which makes a fan with part of the bag, a small vial of mild calming essential oil, antibacterial gel, some floss/picks and some cotton swabs and the bag works as an emergency puke bag.
COPAA’s mission is to protect and enforce the legal and civil rights of students with disabilities and their families. Our primary goal is to secure high quality educational services and to promote excellence in advocacy.
The Mission and Goals of the ANMS
The American Neurogastroenterology and Motility Society is an organization that was established in 1980 and is dedicated to the study of neurogastroenterology and gastrointestinal motility and functional GI disorders.
Mission of the ANMS To be the multidisciplinary society leading the field of neurogastroenterology by fostering excellence in research, education, training, and patient care.
Neurogastroenterology encompasses the study of brain, gut, and their interactions with relevance to the understanding and management of GI motility and functional GI disorders. ANMS Website
National Digestive Diseases Information Clearinghouse (NDDIC) A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the National Institutes of Health (NIH). NDDIC Web Site
Our mission is to bring pediatric feeding struggles to the forefront, so infants and children are identified early, families’ voices are heard, and medical professionals are equipped to deliver collaborative care. Feeding Matters Web Site
IFFGD is a Public Charity designated under the U.S. IRS code 501(c)(3). We are a registered nonprofit education and research organization. Our mission is to inform, assist, and support people affected by gastrointestinal (GI) disorders. Founded in 1991 by Nancy Norton and William Norton, IFFGD works with patients (both adults and children), families, physicians, practitioners, investigators, employers, regulators, and others to broaden understanding about gastrointestinal disorders and support or encourage research.
MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began as an idea in 2005, and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same: to make a measurable impact in the lives of those who are affected by mitochondrial disease.
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
The National Organization for Rare Disorders The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
View the NORD statement on the FDA Safety and Innovation Act, which is a monumental step toward the development of safe and effective treatments for millions of Americans with rare diseases. PDF of full Article.
United Mitochondrial Disease Foundation UMDF strives to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
“The mission of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition is to advance understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.”
The membership of NASPGHAN consists of more than 1800 pediatric gastroenterologists, predominantly in 46 states, the District of Columbia, Puerto Rico, Mexico, and 8 provinces in Canada.
NASPGHAN strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research, and education. Pediatric gastroenterologists specialize in the care of children with chronic abdominal pain, diarrhea, constipation, vomiting, bleeding from the GI tract, inflammatory bowel disease, liver diseases, diseases of the pancreas, poor weight gain, and nutritional problems. Pediatric gastroenterologists specialize in gastroesophageal reflux (GER), peptic ulcers, H. pylori, celiac disease, Crohn’s disease, ulcerative colitis, Hirschsprung’s disease, cyclic vomiting, polyps, gallstones, hepatitis, biliary atresia, jaundice, pancreatitis, lactose malabsorption, failure to thrive, and other common and rare disorders. Most pediatric gastroenterologists perform endoscopy, colonoscopy, esophageal pH probe studies, esophageal and rectal manometry, and liver biopsies.
Patient AirLift Services (PALS) arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up, for compassionate assistance, for military personnel/family requests through the PALS for Patriots Program, or for humanitarian purposes through the PALS Sky Hope Disaster Relief Program.