Welcome to the official website for the Cyclic Vomiting Syndrome Association (CVSA). As you probably agree, CVSA is a very unpleasant name for a non-profit organization, but CVS is an extremely unpleasant illness so we need to make it easy for people to find us. I hope that at the minimum, you will find our website informative about CVS and hopefully go beyond that to find out more about our work of outreach to those still suffering in isolation with this mysterious and disruptive illness.
CVSA was founded by myself and a handful of parents and patients in 1993, after the majority of the founders had been dealing with CVS without a diagnosis or hope of treatment. My daughter was plagued with CVS episodes for eleven years before she was diagnosed. We continue to work past the unpleasant name, against the odds of a small non-profit, and beyond the frequent medical skeptics. CVS causes far too much suffering for us to stop. Don’t hesitate to share your thoughts and/or needs with us as you discover much-needed information about this difficult illness.
Kathleen Adams, B.S.N., R.N.
President Emerita and Co-founder
Cyclic Vomiting Syndrome Association