I am 24 years old, a marketing/public relations professional, road race runner, and a basketball enthusiast. One thing that most people don’t know about me is that I have been suffering from a rare disease (Cyclic Vomiting Syndrome) for about 18 years. When I was diagnosed in first grade I was lucky that we lived in Waukesha County near Children’s Hospital of Wisconsin, where there was a specialist to see.
Living with CVS is difficult and most people don’t understand that certain normal activities for them can cause an episode for CVS sufferers. I have been to the ER numerous times, had extended stays at the hospital, and been through too many tests to count. Throughout the years I have learned to stay away from certain things in order to prevent an episode, but I don’t let it control my life.
I was able to go away to college and I graduated Summa Cum Laude from Valparaiso University. Since high school I have participated in numerous running races including half marathons. Lastly, I am a young professional living on my own.
I think that it is important for younger CVS sufferers to not let CVS stop them from participating in sports, musical activities, and other extra curricular activities.