Developing Formal Guidelines for the Diagnosis and Treatment of CVS in Adults

Update October 2017:
Once or twice a month conference calls have been held along with in-person meetings. Tireless work has been completed on the available literature search and evaluation of relevant articles. This process must be completed before the work of writing the document can commence. Yet to be published relevant articles are being considered as they become available.

The process used in evidence-based practice to frame and answer a clinical or health care related question and background questions have been completed. This framework is also used to develop literature search strategies. The first draft of the main manuscript incorporating background questions is being completed by the committee.

Because of an emerging decision by the publication board of the journal of choice for the final document, Neurogastroenterology and Motility, there may be good news coming of an agreement between the committee and the publisher that would expand the usefulness of this document beyond what we originally expected. Stay tuned for that news.

Again, like the consensus statement for the diagnosis and treatment for CVS in children, this resulting document will provide an excellent resource for clinicians diagnosing and treating CVS in adults around the world. We thank the financial donors, for this project, for their generosity making it all possible for the benefit of many. Also, the tireless efforts of all the committee members.

When CVSA  was founded in 1993, it was thought that CVS was a condition of childhood and adolescence. Now we know that adults also suffer from CVS. There is CVS that begins in childhood and may extend into adulthood and adult onset CVS. As so many adults can attest, the condition causes untold suffering and disability, and often leads to family, school, and career upheaval.

Doctor showing tablet to her patient in hospital room

With children’s guidelines already in place thanks to CVSA fundraising and our strong medical team, we are embarking on a partnership project that will help adult sufferers around the world. Partnering with the American Neurogastroenterology and Motility Society (ANMS), a strong medical committee of ten medical professionals has been formed to develop guidelines for the diagnosis and treatment of CVS in adults. When completed, these guidelines will help doctors and ER personnel around the world understand how to diagnose and treat adult CVS patients more effectively.

Developing medical guidelines is a rigorous and expensive process, estimated to take two years. This is where you come in. CVSA is actively seeking financial sponsorship for this project through our membership and beyond. You can be part of this long overdue work of CVSA, the product of which will reach people still suffering in isolation with CVS. Please consider sending in a donation through our website.