Cyclic Vomiting Syndrome Association

10th International
Family and Adult Conference

June 29 - July 1, 2012

Sheraton Milwaukee Brookfield Hotel
375 South Moorland Road
Brookfield, Wisconsin 53005

Please join us for an informative and enjoyable weekend at the Sheraton Milwaukee Brookfield Hotel located just 17 miles from General Mitchell Airport. The hotel is within walking distance to shopping, 3 miles from the Milwaukee County Zoo, 12 miles from Milwaukee's Lakefront, the Summerfest Grounds and
the Milwaukee Art Museum.

MORE INFORMATION HERE

Fundraiser in Pennsylvania

WHAT:
Nostalgia Night
hosted by the Pottstown Car Club
WHEN:
Saturday, June 2, 2012 from 5PM to 9PM
WHERE:

236 E. High St. Pottstown, PA
in front of the Laserworx Business

Dan Hoffman has been given permission to set up a fundraising and informational table on behalf of CVSA. If you would like to help, you can contact him at dhoffman1985@live.com and I know he would love to meet you if you can stop by!

Let’s get out there and support Dan in his effort to raise some money and raise awareness at the same time.

ATTENTION OREGONIANS!

We have a person in Oregon
who would like to start a support group
but she needs you!

If you are interested,
please contact Dana Kessler from Waldport, OR
at 541-563-4136

Help Put a Face on CVS

Tell Your CVS Story

at the
10th International Family and Adult Conference

Many of you saw the query from CVSA parent, Linda Fox, requesting stories from the CVSA population. With the annual conference just around the corner we have a perfect opportunity to make it easier than ever for you to tell your CVS story. Seth Dearborn, a professional videographer, will be setting up a “storytelling” area at the conference for sufferers, their families, the CVSA staff and doctors who wish to talk about the syndrome in their own words.

Having the videos done at the conference is an efficient way to get high quality video from as many CVSA conference attendees as possible. By putting our stories on our website, we can give CVS a real face --- actually many faces--- and help educate the public.

Linda Fox, and her 34-year-old son Brian (a CVS sufferer himself) will edit the videos shot at the conference and weave a compelling tale. If you’re attending the annual conference, please make the “CVS Story” a stop on your conference agenda and help spread the word.

2012 Wisconsin Run/Walk PukeMonster Pic

“Puke Monster” drawn by Brodie Conklyn, age 8, CVS Sufferer

Join us in Frame Park in Waukesha for the

6th Annual Run/Walk to Stop
the Cycle of CVS
Saturday, June 2nd, 2012

MORE INFORMATION HERE

Learn more about CVS:

The above video was created by
Seth Dearborn and Kaare Christian

Contributors include:
Victoria McCabe, James O'Reilly, Kari Christian,
Anne Grechanik and Robin Raskin

A Message From the President

Welcome to the official website for the Cyclic Vomiting Syndrome Association (CVSA). As you probably agree, CVSA is a very unpleasant name for a non-profit organization, but CVS is an extremely unpleasant illness, and we need to make it easy for people to find us. I hope that at the minimum you will find our web site informative about CVS and hopefully go beyond that to find out more about our work of outreach to those still suffering in isolation with this mysterious and disruptive illness.

Photo of Kathleen Adams, BSN, RN, President

Kathleen Adams, RN, BSN, President and Co-Founder
of CVSA

CVSA was founded by myself and a handful of parents and patients in 1993 after the majority of the founders, had been dealing with CVS without a diagnosis or hope of treatment. My daughter was plagued with CVS episodes for eleven years before she was diagnosed. We continue to work past the unpleasant name, against the odds of a small non-profit, and beyond the frequent medical skeptics. CVS causes far too much suffering for us to stop.

Don’t hesitate to share your thoughts and/or needs with us as you discover much-needed information about this difficult illness.

Sincerely,

Kathleen Adams, B.S.N., R.N.
President and Co-Founder
Cyclic Vomiting Syndrome Association

Our Mission

The Cyclic Vomiting Syndrome Association (CVSA) serves the needs of cyclic vomiting syndrome (CVS) sufferers, their families and professional care givers by raising awareness and providing education and support to those affected by cyclic vomiting, abdominal migraine and related disorders while advocating for and funding research.

Established in 1993, CVSA has grown from a handful of interested parents and professionals, into a network that includes over 40 medical advisors and volunteers serving in the U.S. and Canada, as well as over 30 other countries worldwide.

The association’s primary focus is working toward a cure, through the support of several promising research initiatives, and supporting its members by strengthening communications and offering a wide range of resources for education and support.

Cyclic Vomiting Syndrome Association, Hope Starts Here

A Message From the President